Neuromuscular: What to Expect
If you are a new patient the Neuromuscular Disease Clinic, please know:
Your initial appointment may be 2 hours or more in order to to take our time to get to know your child and recommend the best treatment
Before your first appointment with us, you may be asked to complete ECGs and/or pulmonary function testing. The test results give our doctors the information we need to provide the best care to your child.
After being seen by one of our specialists, you may also be seen by one or more of our multidisciplinary team members including physical, occupational, speech or clinic nutrition services as well as case management and social work services
Meeting so many teams and specialists in one visit may be a lot to absorb. Keep in mind that our team approach is designed to provide your child and your family with quality care in every aspect of the disease process including medical, emotional and social support.
During this first visit with the team, be sure to ask any questions of our team members. Some families bring a notepad with questions written down, some find it helpful to jot down notes, or some even record their doctor’s answers on their smart phones. Whatever way you choose to communicate with us, we’re here to answer your questions…and to listen.