Sickle Cell Disease: Referral Directory
- Bonita Conley, MSN, RN, PNP-BC
- Deborah Boger, MSN, RN, CPNP
- Jennifer B. Evans, MSN, RN, CPNP
- Tasha Barksdale, RN
- Brad Cook, RN, BSN
- Sheryl Bartlett, RN
- Heather Holder, RN
- Ronda Wooley, RN
- Cathleen Moffitt, LMSW
- Leax Adix, CCRP
- Roxana Mars, RN, CPON
- Michael Henson, CCRC
- Kiana Johnson
Description of services:
The Sickle Cell Disease Program at Children’s is one of the nation’s largest serving pediatric patients. It is a key component of the Southwestern Comprehensive Sickle Cell Center. It focuses on the prevention of disease complications and management using the newest treatment strategies, including hydroxyurea, chronic transfusions, stem cell (bone marrow) transplantation and state-of-the-art approaches to infection prevention, pain management and treatment of specific organ-related complications (chest syndrome, priapism, avascular necrosis of the femoral head, etc.). For more information, log on to www.childrens.com/ccbd.
Procedures performed or problems diagnosed and treated:
Consultative diagnostic and management services for infants, children and adolescents with the following conditions:
- Sickle cell anemia
- Hemoglobin sickle C disease
- Sickle beta thalassemia
- Other hemoglobinopathies
Information for referral sources:
- A referral from physician or referral source is required.
- Patient instructions for specific tests will be provided when the appointment is scheduled.
- To avoid unnecessary testing, have the family bring relevant medical records, test results and X-rays to the appointment.
- Services are provided in close cooperation with the patient’s referring physician.
- Diagnosis, evaluation and recommended treatment information is provided promptly to the referring physician.
After hours or for emergencies, call 214-456-7000 and request the on-call hematologist-oncologist.
Please provide the following when calling to schedule a patient for a diagnostic evaluation:
- Patient name and date of birth
- Probable diagnosis
- Insurance/referral information
- Physician clinical findings or symptoms which caused the patient to visit physician
- Parent (guarantor) name, address and phone number
Why Children's Medical Center?
- Children's is the principal clinical site for Southwestern Comprehensive Sickle Cell Center. The center is one of the first recipients of a multi-million dollar five-year grant from the National Institutes of Health to conduct cutting edge basic and clinical research to develop better treatments and a possible cure for sickle cell disease.
- Our widely acclaimed diagnostic and treatment program for children with sickle cell disease is one of the nation's largest, with more than 700 active patients.
- Children's offers the newest treatment modalities, such as chronic blood transfusion programs, hydroxyurea therapy and stem cell transplantation.
- Outreach clinics are conducted in Tyler and Paris, Texas, and account for approximately 15 percent of all outpatient sickle cell visits.
- Hematologists on the medical staff at Children's have spearheaded the development of a comprehensive set of diagnostic and management guidelines for children with sickle cell disease that have been endorsed by the Texas Department of Health.
- Sickle cell patient information, such as every hospitalization and major complication, has been collected over the past 20 years on a computerized database, which helps improve continuity of care and research.