Phantom limb pain in children

The Pediatric Pain Management Center at Children’s Health℠ offers children and parents a specially trained team that evaluates and treats chronic pain, acute pain and headaches.

Our interdisciplinary approach involves many other specialties to treat pain using multiple approaches at once. The Center can help lessen the pain associated with a variety of diseases and disorders including, but not limited to, chest and back conditions, nerve injuries, rheumatologic conditions, sports injuries, cancer and phantom limb pain (phan·​tom - limb - pain). We also have a dedicated headache clinic for those children suffering from headaches.

Dallas (Cityville)

214-456-5540
Fax: 214-867-6901

Dallas

214-456-8131
Fax: 214-456-0654

Plano

214-867-1200
Fax: 214-867-9480

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What is phantom limb pain in children?

Some children who have been born without a limb or who have had a limb amputated feel pain in the non-existent body part. This is often called phantom pain. This pain is caused by damaged nerves from the amputated limb that continue to send signals to the brain. These signals are interpreted as pain.

What are the signs and symptoms of phantom limb pain in children?

While the pain your child experiences is not caused by an actual injury, the sensations are very real and can include burning or shooting pain, achiness or cramping, or pins-and-needles feelings. Phantom limb pain is a well-recognized pain syndrome for which treatment is available.

How is phantom limb pain in children diagnosed?

To diagnose phantom limb pain, your child’s provider will do a detailed physical exam of your child. Your provider will want to know about the type of pain or sensation and when it is typically experienced. If your child experiences phantom limb pain after an amputation, the provider will also want to know about the circumstances of the removal of the limb.

What are the causes of phantom limb pain in children?

While the pain your child experiences is not caused by an actual injury, the sensations are very real. Following an amputation, there are still nerves present in the remaining portion of the limb and these nerves send pain signals to the brain and tell the brain that the limb is still present.

How is phantom limb pain in children treated?

Phantom limb pain can disappear on its own. But for pain that is experienced over time, a specific treatment plan will be created based on your child’s symptoms, level of pain and age.

Multiple phantom pain treatments may be combined and can include:

  • Pain relievers – over-the-counter or prescription
  • Anti-seizure or anti-depressant medications, which can ease  neuropathic pain
  • Topical creams or patches
  • Physical therapy (PT)
  • Occupational therapy (OT)
  • Mirror therapy
  • Desensitization therapy
  • Exercise
  • Psychological counseling
  • Electrode nerve stimulation
  • Lifestyle changes, such as weight loss or activity modifications
  • Massage therapy
  • Acupuncture
  • Nerve blocks
  • Surgery

Phantom limb pain in children doctors and providers

Frequently Asked Questions

  • Will my child outgrow these phantom pains?

    Phantom limb pain can resolve on its own with time. Over time, pain can interfere with your child’s quality of life and decrease physical function. Phantom limb pain is a well-recognized pain syndrome for which treatment is available.

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